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information about communication impairments, see Cherab's partner informational site, Speechville
Express Read more about The Late Talker, a new book for families of children who are late to talk. |
Success Stories
Beyond Hope Written by Khalid, age 13
Khalid age 15 writes: Participating in events helped my Apraxia over time. For speech you should have a extremely dedicated therapist who you like. Their were times I was frustrated with all the therapy, but my therapist made it fun when we were together. My speech therapist is the one who introduced me to basketball. When we played the game this motivated me to use my words. I love the game. I play basketball everyday. Apraxia is tough to have, but there is hope to go on.. Don't be afraid, and know you are not alone, were in this together. At the "Talking Page", hear Khalid and his brother JD, who also has apraxia, and read some of their story. Notes from Cindy (Khalid's Mom) Khalid
at age 3 was a child of few words and now he is a teenager that is fully
intelligible in speech. His accomplishments this past year has
been impressive. Though Khalid still has struggles in his written language,
he has come far in many areas of academics. He was tested this past
May and is now reading at an 8.3 year level. Khalid works hard at keeping
his grades up and strives to stay on the honor roll. Khalid won 2nd
place in the Regional National History Day. Soon thereafter he participated
in the State Competition in National History Day 2000. He participated
in a stage performance, for both Regional and State.
In
the State Competition, Khalid's long hours of dynamic work were recognized
and he received 2 awards. Khalid was awarded "Honorable Mention" for best
overall primary resources in written work for presentation, and also
awarded 3rd place in the "Performance" category in the state competition.
To end his seventh grade year, Khalid won an outstanding leadership award
through his school, for excellence in teamwork. We are and have always
been so proud of Khalid. He's an awesome kid! He is looking forward to
his eighth grade year! As far as socializing amongst his peers,
Khalid has made new friends. However among his favorites are still those
from past years.
Just of few of Khalid's many educational and sporting achievements! Rachel's Story (Rachel's mom believes that the children diagnosed with apraxia today have a much better chance since there is so much more knowledge about apraxia and appropriate therapy. For example, the first time Rachel had oral motor therapy, which is a therapy used for apraxia and other speech disorders, was in high school, and it wasn't comfortable to do at that age. Knowing how few people today know about apraxia, when Rachel was diagnosed 20 years ago, there obviously was much less information, and understanding. Rachel's mom became such an advocate for Rachel that she became a special ed teacher!) Ever since I saw the article in the Star Ledger about your son Tanner, I've been meaning to write. I too have a child that was diagnosed with apraxia at an early age. Rachel is now 21 and a second year college student. I noticed early on that her language development was below that of her peers. She often seemed to be confused and would become terribly frustrated because she could not communicate her needs. At the age of 2, Rachel had very little language and what she did say was pretty unintelligible. She began intensive speech therapy which continued all through high school. In addition to the apraxia, she has other learning disabilities, that always made school difficult. Socially she has always been behind her peers, which is often heartbreaking. Rachel still has difficulty with the pronunciation of many multi-syllabic words. The quality of her speech is different, and still today I often have to ask her to repeat what she has said. Academically she has worked hard and has always had a positive attitude. She is an early childhood education major and wishes to work with children with learning disabilities. Two years ago she was honored by the ARC of Somerset County for her volunteer work with children with disabilities and this summer she is a camp counselor. As you can see, we are extremely pleased with all that she has accomplished. It hasn't been easy for any of us and many tears have been shed over the years. There were never any support groups when she was growing up. It was hard to always feel alone. I dealt with the issues by learning all that I could about language and learning disabilities, eventually becoming a special education teacher. The biggest advice one can offer anyone in a situation like this is be an advocate for your child and teach them to be an advocate for themselves. Also never give up. Although your child may not learn things quickly, as long as they are learning there is hope. Good luck to you and your group. Susan Susan is a Special Ed teacher as well as Rachel's mom. You can email Susan or Rachel if you have questions or comments.
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The Cherab Foundation is a world-wide nonprofit organization working to improve the communication skills and education of all children with speech and language delays and disorders. Our area of emphasis is verbal and oral apraxia, severe neurologically-based speech and language disorders that hinder children's ability to speak.
The Cherab Foundation is committed to assisting with the development of new therapeutic approaches, preventions and cures to neurologically-based speech disorders. We bring together parents and medical, research, and educational professionals. Please join us and help to give our children a smile and a voice.
Cherab Foundation
Communication Help, Education, Research, Apraxia Base
P.O. Box 8524 PSL, Florida 34952-8524
Phone: 772-335-5135Disclaimer | Privacy Statement | E-mail Cherab
Copyright © Cherab Foundation 1998-2002 All rights reserved.
Last Update: June 20, 2004